Has your child been diagnosed with autism?

If you are a parent or carer of a young child who has just been diagnosed with autism (or is going through the diagnosis process) then you are in the right place.  I went through a range of emotions when my son was diagnosed with autism- it can be a huge adjustment.

What to do first

I asked a number of parents who have been in your shoes, autistic adults and teachers that work with autistic students to give their top advice to recently diagnosed parents. I recommend you read their advice before you do anything else. 

Autism Bloggers

Information sources

I was desperate to get as much information about autism as possible.  The problem is when you don’t know much about a subject it can be very difficult to decipher what is accurate and helpful and what isn’t.  I spent hours on google looking up autism and it came up with all sorts, but only some is helpful.

challenging behaviour

The National Autistic Society (NAS) is a great source of information and a great place to sense check information.  I would really recommend getting in touch with any local autism support groups. Your local council or GP should be able to advise on what is available locally.  I have also found local parent support groups on Facebook a great source of support.  Other parents can offer great advice as they have been through it themselves.  Please be careful to check information especially before you pay for anything.

You should be provided with information on what is available and this is likely to include the opportunity to attend a course to learn about autism.  The course is often known as the Earlybird programme. This was a fantastic course and well worth attending, the only downside being you often have to wait for the next course when if you’re like me you want the answers now!

Take your time reading information as there is so much it is easy to get overwhelmed.  Think about what you need to focus on first and take it one step at a time.  I started blogging to share that information I was desperate for before I got it.  I wanted practical advice on what I could try at home and more importantly how to do it.  Below is a selection of posts that you may find useful.

Helpful information to get you started at home

The first question I needed to answer was What is autism? I had lots of preconceptions about autism but no actual knowledge.  Here is a quick summary or the in depth answer.

The next issue for me was trying to get my head around all the new terminology and acronyms.  If you are struggling with this here is an autism glossary.

I really wanted to know what I could be doing at home to support my son as your standard parenting techniques were not working for us.  You may want to try introducing:

TEACCH at Home, autism teaching

Are there things you are struggling with? You may find some of these posts helpful:

Speech and Language

Speech and language can be a key area for many young autistic children.  Hopefully you have had some access to speech and language therapy although this is often limited. Speak to your health visitor, GP or local authority if your child needs to see a speech and language therapist

PECs cards

Great ways to interact together

Finding what works for each child will be different but here are some ideas to try:

Paperwork

Probably the worst bit is the paperwork but you will already be an expert if you have just gone through the diagnosis process.  You may want some help to apply for:

I hope this is helpful to get you started.